AHF  Directory   Programs and Services for the Bleeding Disorders Community Since 1989, we have dedicated our services exclusively to the bleeding disorders community...because you deserve the very best. n    Pharmacy Services Program n    Emergency Services Program  n    Disease Management Services  n    Reimbursement Services Program  n    Educational Services Program n Charitable Giving Program    n    Supporting our Community  “In the mid-eighties we asked ourselves how we might help the many families who were living every day with the same worries, fears, and challenges as we were. Our vision was to bring families the very best pharmacy and disease management program possible and to shoulder some of their burden of living with bleeding disorders.  Our vision came to life when we decided to create AHF.  Since 1989 we have dedicated ourselves to serving the needs of families living with bleeding disorders. Until there is a cure, we pledge that we will continue to bring home delivery of life-giving medications and support services to families across the country.”  Donald Colburn, Founder of AHF. Hemophilia and Bleeding Disorders  Whether you are placing an order or calling to discuss a problem, our staff is there for you. AHF client families receive prompt and personalized services 24 hours a day, 365 days a year where needed.  We will cut through the red tape of insurance reimbursement so that living from our caring and well-informed client serves staff.  We will deliver prescribed clotting medications and related ancillary products to your door using next-day service.  We will arrange visiting nursing services and provide you with safety and communication products your life, and not doing paperwork, will be your focus.  Whether your family lives with bleeding disorders, as we do, or you provide medical care to families with bleeding disorders, you deserve the very best in care and services.  Learn more about how AHF can bring new meaning to the words quality care, through our innovative programs…LifeGuard™, SafeGuard™, and ClinicGuard™.  Pharmacy Services Program  On-site Pharmacy Our independent, on-site pharmacy warehouse is located at our corporate headquarters providing a full range of prescription clotting products from all manufacturers.  Our commitment is to provide the best quality services to client families from coast to coast.  Ancillaries, needed to complete infusions, are included with home delivered clotting medication.  Pharmacy Team Our team of licensed pharmacists and certified pharmacy technicians has received special training in the treatment protocols for hemophilia, von Willebrand disease, and related bleeding disorders.  As a part of our client services, these pharmacists and pharmacy techs monitor your prescriptions and your at-home supplies, as well as notifying you of any emergency recalls.  Our pharmacy team is on-call 24 hours a day, 365 days a year to ensure that we are able to handle any emergency that might arise.  Emergency Services Program   Ordering and Delivery Ordering and next-day delivery of factor medications and ancillaries is available 24-hours a day, 365 days a year anywhere in the United States by overnight service.  FedEx, UPS, the postal service, and private courier services are available to provide regular and emergency deliveries to homes, clinics, and hospitals.  Medic-Alert Program Enrollment in the Medic-Alert program, complimentary wallet cards, and Medic-Alert jewelry are available upon request.   Identification/Treatment Card Laminated identification/emergency treatment cards are available upon request.  Hemophilia Treatment Centers (HTC) When planning travel, clients may request the names and addresses of Hemophilia Treatment Centers en route and at destination locations.  Special arrangements will be made to ship clotting products and supplies to HTCs or to alternate vacation addresses or medical facilities during periods of travel.  Disease Management Services Client Services Program …Round-the-Clock Care  Our client services staff is the best in the business.  They are available 24 hours a day to place an order, discuss a problem, or help assist in an emergency.  Hemophilia, von Willebrand disease, and related bleeding disorders are our only business.  Our client services staff is here for you and your family...and we have been here for the bleeding disorders community for nearly 15 years.  The LifeGuard™ Program  Home Infusion All AHF client families receive the full benefits of the LifeGuard program. Our client services staff will make all of the necessary arrangements to set up your home infusion program according to the your and the doctor's instructions. LifeGuard products and services will be included when AHF invoices for clotting medications.  Overnight and Emergency Services The clotting medications, billed to a health plan or insurer, include delivery by FedEx, UPS, or the U.S. Postal Service overnight delivery.  In emergencies, courier service can be arranged at no additional cost to the client.  Ancillary materials are provided including winged infusion sets, syringes, alcohol wipes, gauze pads, adhesive bandages, tourniquets, cold packs, etc.    Biohazard Containers Each client receives biohazard containers that are delivered from and come with pre-paid return postage to an authorized and regulated disposal firm via U.S. Each client receives a travel bag for transporting clotting medications, an educational binder of timely and related information, special equipment and services that are needed, and brochures on specific topics of concern.  Factor Log Number History AHF retains a history of factor lot numbers used by each client.  These data are permanently retained in our files.  Each client receives an infusion binder and log forms to record home infusions.  Recall Notices Each family and medical provider, with whom we work, receives notices of recalled products and supplies.  We also have this information on our website linked directly to the Centers For Disease Control Recall and Withdrawal information site.  The SafeGuard™ Program  SafeGuard is our specialized disease management program for health plans whose subscriber group includes people with bleeding disorders.  As the name Safeguard suggests, an alliance is formed between AHF and a health plan to maximize the benefits and health outcomes for each subscriber who has a bleeding disorder.  The mutual goal is to enhance quality of life and to reduce morbidity and mortality through the effective management of care services.  Safeguard provides subscribers with prompt, cost-effective, patient-oriented hemophilia disease management services.  Our staff is knowledgeable and sensitive to the needs of families with bleeding disorders and understands the challenges of coping with these life-threatening conditions.  ClinicGuard™: The Hemophilia Treatment Center Program  In 1995 we developed a disease management program exclusively for Hemophilia Treatment Centers (HTCs).  ClinicGuard allows AHF to act as a prime sub-contractor for an HTC.  Through these sub-contracts, we have assisted centers in their efforts to provide the very best patient care and to obtain the benefits of the federal PHS pricing program.  This sub-contractor relationship, called ClinicGuard, enables centers to diminish their dependency upon outside funding while offering patients outstanding quality care, the most competitive retail prices in the country, and the most reliable home service available in the U.S.  In addition to our standard-setting disease management services, ClinicGuard additionally offers HTCs a full package of business management solutions allowing center staff to focus on delivering quality health care.  Reimbursement Services Program     For over 16 years, we have learned to manage the flood of papers and the complex of red tape that is all part of the insurance picture.  Our pledge, from the start, has been to help carry some of the burden of bleeding disorders care for our clients.  We have experience with hundreds of insurance carriers, state health insurance programs, disease management, and case management programs.  Let our experience take the worries out of reimbursement for your family.  Our reimbursement specialists work with each client family to ensure a smooth transition to our disease management program. We file claims, follow-up on reimbursement with insurers, negotiate with third-party payors to overcome the red tape, and manage the transitions created by a change in employer or insurer.  We work with each family to maintain insurance coverage, monitor lifetime caps, and handle any reimbursement issues necessary to ensure coverage.    Educational Services Program   Family Education Resources Our family education program includes quarterly informational updates on topics related to hemophilia and related bleeding disorders, a comprehensive resource binder available to each new client, and a library of resources including a series of 14 different packets available to requesters at no charge.    Our publications program includes six (6) excellent brochures on bleeding disorders:  Hemophilia, Mild Hemophilia, Living with Inhibitors, Women and von Willebrand Disease, Thrombophilia, and Helping Schools Help.  These brochures are available to consumers, hemophilia treatment centers, hospitals, and individual practitioners at no cost.  Professional Education Resources We provide a comprehensive resource binder of educational selections and informational materials pertaining to hemophilia and inherited bleeding disorders to professionals who care for those with bleeding disorders.  A similar binder is also supplied free of charge to contract managers and case managers with whom we work.  We offer five (5) on site educational presentations and one on-line educational presentation with Continuing Education Unit (CEU) credits.  The Commission for Case Managers Accreditation (CCMC) accredits all CEUs for professionals whose responsibilities include making health-related decisions surrounding care for people with bleeding disorders.  Topics include:  Hemophilia:  Advances in Treatment over a Lifetime What is Hemophilia? – Hemophilia 101 (on-site and on-line) Hemophilia:  Advances in Hemophilia Treatment The Advantages: Recombinant Factor and Prophylactic Treatment Von Willebrand Disease and Women (on site and on-line)  http://www.ahfinfo.com Our award winning web site was created in 1999 to provide helpful information on bleeding disorders, treatment and care, available resources and links, and our disease management program.  We view our site as a community service and educational resource.  Charitable Giving Program  Local Program Support We have always believed local support and advocacy organizations to be the backbone of the hemophilia and bleeding disorders national movement.  We support fund-raising efforts, local events, local newsletters and educational programs, materials production, camps, and sponsorships promoted by chapters across the country.  Our staff has personally contributed volunteer hours serving on local boards and committees.  National Program Support Since our founding in 1989, we have donated a substantial portion of net income to the bleeding disorders community. We have supported national meetings, educational programs, national research initiatives like the Judith Graham Pool Fellowship, etc.  In addition, our staff members contribute volunteer hours serving on national committees and working groups of the National Hemophilia Foundation, the World Federation of Hemophilia, the Centers for Disease Control and Prevention, and the Federal Blood Products Advisory Committee, to name a few.    The Beth Carew Memorial Scholarship Program Beth Carew was a woman with hemophilia and she was a community leader.  She was an outspoken advocate for the needs of families living with bleeding disorders and for the needs of women who were in any way affected by bleeding disorders.  She was a prime mover in the creation of the Women's Outreach Network of the National Hemophilia Foundation.  In 2002 we created the Beth Carew Memorial Scholarship in her name.  The Beth Carew Memorial Scholarship is now a program of the Colburn-Keenan Foundation. It's Time for a Cure "It's Time for a Cure" is the national campaign sponsored by the National Hemophilia Foundation (NHF) to underwrite research for a cure.  We are committed to ongoing and groundbreaking research that will, in the near future, provide more effective treatment medications and a cure for bleeding disorders.  To date we have contributed $1,000,000 to support this campaign.  In addition, we ask that you join us.  We have created a series of beautiful bears for bleeding disorders fundraising.  For each beanie bear that is ordered with a $10.00 donation, AHF will send $10.00 to NHF.  We have also created a large white teddy bear that can be yours for a donation of $25.00.  All donations are forwarded to the NHF in the name of the person who has made the donation.  Families across the country have purchased these bears to do local fundraising for It’s Time for a Cure.  To date, we have sent over $19,000 in bear donations to It's Time for a Cure.    Camp Scholarship Program For over a decade, we have offered camping scholarships to young people with bleeding disorders.  Local organizations and Hemophilia Treatment Centers are frequently the sponsors of summer camping weeks for children, sometimes siblings, and sometimes whole families, affected by bleeding disorders.  We firmly believe that the camping experiences can be not only a wonderful and enjoyable experience, but also a learning and bonding experience for young people affected by bleeding disorders.  For this reason, AHF has and continues to provide support to camps across the country, in addition to offering individual camping scholarships to young campers.  Supporting our Community  “We believe it is so important to give back to our community.  This has always been our guiding principle.” Kathy Ann Keenan, Co-Founder, AHF. AHF is a family business.... a hemophilia family business...we are a generous supporter of hemophilia chapters, local bleeding disorders organizations, the National Hemophilia Foundation, the NHF Annual Meeting, the Committee of Ten Thousand, The World Federation of Hemophilia, the Hemophilia Federation, local newsletters, golf tournaments, summer camps, special events, and much more.   Contact our Client Services Center, at any time, at 800-243-4621 or via E-mail, for further information on bleeding disorders disease management services for your family.   Setting the Standard of Care for the Bleeding Disorders Community AHF®, Inc. does not prescribe medications or give medical recommendations to individuals. AHF does not endorse or refer any particular individual to a specific HTC or medical provider.  It is best to obtain medical recommendations from your physician and/or your HTC.